Live stress free. Please, what land is my doctor living in. To help alleviate some of the stress I do crafts, or read, or just hang out with friends, but there is always stress somewhere or being caused by someone.
Sunday, November 15, 2009
I always laugh when my dear doctor tells me that stress is bad and try to stay stress free. UM, that is just not possible. I still work full time 40 or more hours a week, care for my home, my husband, and my animals as well as an ailing parent. Money is always tight and life sometimes just doesn't go the way it should.
Sunday, November 8, 2009
So being my own advocate and just wanting to know what the heck is going on with my body in general. I did a search for this new symptom that I have been having lately. If I am correct in my "diagnosis" it is called myoclonus. Whenever I get tired either from walking, exercises or just generally moving around my legs and arms start twitching. I happen to stubble onto an video about a women who has had MS for over 20 years, the interviewer asked her about her leg, that looked like it was hopping around, she stated that it was myoclonus.
So I decided to do some more research and I'll be darn if that isn't what is happening to me. For me personally it is not painful, but extremely annoying. Have you ever tried to stand on your legs when they are shaking uncontrollably? Oh well, just one more thing to add to my list...sigh.
Monday, October 26, 2009
I went onto some of my normal MS websites (forums) and there seems to be alot of post about pain, weather muscle or joint pain. I do normally see these posts, but there seems to be a huge abundance of them lately. It makes me wonder if the season changing might be a trigger for alot of us that have this stupid disease. Since the end of spring about 2-3 weeks ago here in Nebraska, I have had more muscle and joint pain and fatigue than normal. I try to remember if it has been like this every season, but my short term memory loss is part of my disease. We will see as the season goes on.
Sunday, October 25, 2009
This is a blog about my disease and me. I have started and stopped journals so many times. I can never seem to remember to keep writing. Maybe a blog will help. I was diagnosis with MS January 1st 2000. (HAPPY NEW YEAR). This was a bittersweet moment for me. This was the beginning of a journey that I did not know I was prepared for. Nine years later, I can still function for the most part in the world. I have good days, I have bad days and I have super bad days. There is no in between. I force myself everyday to accomplish what most people accomplish on a daily basis. So thats the basic of it. (very basic). I will keep this updated with more later.